By Lisa Ansay — May 7, 2012 1:24am Sodium levels were high through the night, so by morning Taylor was not responsive – and vitals were unstable. Even the vitals that were typically rock solid were faltering, and T was struggling. It seems there was a loss in translation between the…
By Lisa Ansay — May 6, 2012 3:21am My apologies for the late delivery of this journal entry. I know many of you have been waiting to hear. Unfortunately after generating journal entries three different times where my connection was lost before I could publish, I decided to just wait…
By Susie Roemhild — May 4, 2012 5:33pm Results from Taylor’s MRI showed some fluid accumulation on his brain. Also He has not been as responsive today as the previously. With this new information they are now taking Taylor to the ICU. There they will put a drain tube in and watch him…
by Lisa Ansay — May 3, 2012 2:03pm Taylor had a quiet morning, and slept through most of it. His doctor is lowering pain med dosage (fentanyl patch) and adding some provigil, which will wake him a bit. Taylor will have another MRI with contrast today to see the condition…
By Lisa Ansay — May 3, 2012 1:06am Taylor has his new “speaking trache”, which means the valve at the top of the trache is now configured so he inhales as he always has through the tracheostomy, then exhales through his mouth with breath passing through his vocal cords along…
By Ron Stark — May 1, 2012 9:46pm Taylor had another stellar day today. He woke up early and was in his chair by 8 again. When he is in his chair he seems much more active but tires more rapidly. He responded to many commands, moved his lips to…
By Ron Stark — Apr 30, 2012 7:59pm Taylor was in his chair around 8am today, earlier than previous mornings. He was very active and very responsive to simple commands as well as very curious about all of the tubes and wires hanging off of him. He would grab a…
By Ron Stark — Apr 29, 2012 5:45pm Today has been a very quiet day for Taylor. Not a whole lot of response today but knowing all of the great progress on Friday and another great day Saturday I am sure he is worn out and resting for what is…
By Lisa Ansay — Apr 27, 2012 6:09pm Wonderful day so far…PT and ST first thing this morning, and he was very responsive. He pushed his legs and gave thumbs-up for positive responses. All vitals are perfect, sodium is only a little above range, no fever since yesterday and he…
By Lisa Ansay — Apr 26, 2012 8:06pm Another bump in the road, but he’s doing okay. His infectious disease doctor (her name is Dr. Moran) spoke with me this morning with the following information: he has tested positive for c-diff; his EEG yesterday confirmed it is a brain-wide metabolic…
