By Lisa Ansay — Apr 22, 2012 11:30am Taylor is sitting up in the chair, and has now been completely off the ventilator for the better part of four days. The pulminologist just told me the only reason he still has the vent collar at all is to allow for…
By Lisa Ansay — Apr 21, 2012 7:11pm I just met with the infectious disease doctor who was brought into his medical team early last week. She explained that while the cerebral spinal fluid drawn from yesterday’s lumbar puncture indicated “no organisms present” that would be because of all the…
By Lisa Ansay — Apr 20, 2012 11:09pm Taylor had a few appointments today: lumbar puncture; an “echo”; physical therapy; occupational therapy and two hours of listening to his music. That was a lot for him. His temp was normal for most of the day, although it did reach 101F…
By Lisa Ansay — Apr 19, 2012 7:59pm Okay, so honestly – yesterday was challenging as a parent. Not much fun at all. Taylor was running a fever, 103F – 104F pretty much all day, regardless of the number of ice packs involved. His heart rate was twice what it…
By Ron Stark — Apr 18, 2012 8:29pm Taylor got to sit in his chair for a bit today but needed to lye down because of a coughing spell. His collar has come off and will be off whenever he is in the bed. They put the collar on for…
By Lisa Ansay — Apr 17, 2012 9:10pm First thing this morning, Taylor’s pulminologist changed his trache tube for a completely different one. This was not a friendly process for T, and he had a bit of respiratory distress when they tried to reattach him to the ventilator. The RT…
By Lisa Ansay — Apr 16, 2012 11:27pm Every morning, I walk through the hospital campus and wonder how his night went – if he’s okay – if he’s still running a fever…and of course that list goes on and on…and on… This morning, I walked into his room to…
By Ron Stark — Apr 16, 2012 1:37am Taylor is resting comfortably right now.. His temperature at 11 pm was a cool 98. All other vitals were great also. He responded for mom today many times by wiggling toes and nodding his head for yes and side to side for…
By Lisa Ansay — Apr 15, 2012 1:15am Taylor is resting, and not a lot is being asked of him at this point. He is still battling fever, and more tests have been run to solve the mystery of its origin. There is a possibility that the fever is neurogenic…
By Ron Stark — Apr 14, 2012 12:58am Phase two of T’s recover will be long and anxious. His new stay is not an ICU. Lisa or I will be with him continuously until he wakes up. This phase is to get him off of the respirator assistance and remove…
